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Glossary

Orphanet

Orphanet is currently the most comprehensive reference portal for information on rare diseases and orphan drugs. As a freely-accessible Internet database visited by 30,000 people every day, Orphanet currently contains information from 40 countries, and lists more than 6,000 rare diseases (as per October 2014). The database contains an online encyclopaedia drawn up by European experts, as well as a list of services offered for patients and experts. Here you will find both expert centres and information on current research projects, diagnostic-providers, patient registers, biobanks, clinical studies, networks and self-help organisations.

Contact

Team EU-PATIENTEN.DE

Pennefeldsweg 12 c
53177 Bonn

Phone
+49 228 9530-802/800

Fax
+49 228 9530-801
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